that mommy heart

I’ve gotten a lot of inquiries about Linleigh’s MRI last Monday. Linleigh post MRI 10-1-18 While I do not have results, I was not really expecting results. Dr. Neuro simply needed the spine imaging for his surgical plan. For now I am operating under the age old assumption that “no news is good news.”  They didn’t find anything unexpected and they got all the necessary imaging to move forward with surgery on October 31st, or I would have received a call.  Speaking of the 31st, I have also received questions about the surgery itself.  Now, before I get into details, let me preface...I am NOT a medical person, nor do I ever care to be. I hate needles and an IV in my hand would render my entire arm motionless from fear of messing it up and reliving the torture. My mom is a nurse and I'm not a complete idiot, but I am NOT medically inclined.  I need things simplified. I once told an audiologist "pretend I don't know what an ear is." And while I mostly attrib...

Every moment of every day has an impact on your life. Most moments are mundane, seemingly insignificant and likely forgotten. Many form a memory yet only come to mind when triggered. Others are etched into your brain forever. Some are catastrophic, some life altering, some minor, and some still seemingly insignificant and confusing yet always there.  Each moment plays its part in shaping you, forming you into the person you are today. And while you can't control everything, you do have some control over how you react and respond to the moments life throws your way. Everyone handles things differently, but we each have a choice. It's ultimately up to you to embrace what lies before you and choose if and how its going impact who you are.   I didn't choose all the aspects of this life before me, things happened and I embraced the moments and continue to embrace moments as they come. It's nothing spectacular, it's not noble, it's not awe inspiring.  I'm ...

If you are reading this post you are likely a friend or family member who knows and loves our little Linleigh, and/or was simply curious after my cryptic facebook post this past week. Frankly, there is just far too much to share on social media without being inundated with questions. So I decided to start a blog to journal and share my (our) journey. I'm actually 8 years, 8 months, and 17 days into my motherhood journey. And its been...eventful, to say the very least! I'll recap as needed as I journal, but for now an update on what's been unfolding the past few months and most importantly this past week.  My mommy heart is heavy these days. Plagued with countless emotions as things are drastically and quickly changing for our little buggie. For those who may not know, Linleigh has quadriplegic spastic Cerebral Palsy (CP) due to a traumatic brain injury caused by Hypoxic Ischemic Encephalopathy (HIE) at birth. {HIE is basically doctor talk for saying she suffered ...